Wednesday, January 21, 2015

working on a tumblr and redoing pump vs injections page

There are no posts yet. If you could follow it, possibly support it, that'd be outstandingly wonderful.

http://walkingtowashington.tumblr.com/



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Some of you know about our Pump versus Injections! page.
I am redoing it, so if you have anything to add please
post on the page. Leave your name/Alias and I will add 
your post. Thank you!


indigo

Tuesday, January 20, 2015

it has almost been 2 years

hello, everyone! welcome back.
do you remember when you got diagnosed? because, i do. in fact, on February 12th, it will be 2 years since i've had diabetes! 2 years and 1 day ago, i started feeling my symptoms.

fatigue, going to the bathroom a lot, drinking a lot. i lost 12 pounds because i wouldn't eat. i knew something was wrong, because my mom took us to our favorite pizza place... and i didn't eat anything. i was just refusing. if i did eat, i would sleep for hours.

finally, after my mom realized it wasn't just a cold, she called the doctor. i remember when she got scared ; the lights were all the way up, and the tv was on, yet i was sleeping. she called my nan, to see if she should take me to the ER or just the doctor. after explaining the symptoms, my nan agreed that just the doctor was okay.

the next day -- February 12th -- around 7:30 AM, i was woken up to go to the doctor. i had to bring a urine sample, and it could only be from first thing in the morning, as the first morning urine is the strongest. i brought 2 bottles of water, and my mom made me bring cereal. i drank the water, and we had to stop 3 times so i could pee. my doctor IS an hour away, and i had keytones.

once we got in the parking lot - around 8:45, my mom made me eat some cereal. and believe me, i was starved. but i couldn't eat it, my body was rejecting food. i finally got down about a handful, and then off into the doctors office we went.

once i got back into the room, my doctor took the urine sample from me, and sent it out so they could test it. this took about 15 minutes, so my mom and i were just playing on our phones. 5 minutes later, the doctor came in to test my blood while we were waiting. they had a really.. complex meter. they pricked my finger (which at the time felt like death), and my blood sugar was actually, only around 320-350. however, this is OBVIOUSLY way too high!

once my urine results came back, the doctor said, "We assume she has Type 1 Diabetes. We need you to go home right now and pack a bag, then go to the emergency room.". my mom was bawling her eyes out, while i was sitting there, confused. of course, i was 9 and thought i couldnt have any kind of unhealthy food EVER again.. i was wrong.

we went home, and told my brothers the news. they ran upstairs, got my suitcase, and packed it with legos, drawing pads, markers, stuffed animals, and water bottles. my mom packed my clothes, and called my nan to come down. my doctor is connected to CHOP (Childrens Hospital of Philadelphia, the best hospital in the country!), and CHOP is only around 20-30 minutes away from our house.

once we got there, i had to wait a little bit. for SOME reason, i always wanted to stay in a hospital. i probably read too many books about running around the hospital when i was younger. soon after, they called us back, took my weight, height, etc..

i was EXTREMELY dehydrated. the nurses came in to give me my IVs, and it took Jeremy, one of my nurses, around 6 times, before John took over. It still took John 3 tries. i got 2 in ; one on my hand, and the other in my upper arm.

if i went on any further, i would just be telling you all about my time in the hospital! i apologize.

anyway, last year ; Feb. 12th, 2014, i got my insulin pump! ahh.. it was amazing. the same day, we got a new dog, named axel! i still have this goofball.


ehh.. thats all! 

goodbye , i hope you have a good week.

////indigo


Sunday, January 4, 2015

apology

hello everyone! its been quite a while, hasnt it? almost a whole year. and believe me ; i apologize for this. the past year has been a bit busy for me. in august, i shattered my radial head; having a cast on for 2 months. we fostered 65 cats; most being sick. and mostly, the other admins havent been doing a great job reminding each other..

which is why i will be making my own blog, and i will post much more there. 
i will, however, still post here. however, as i will be the (possibly) only admin, i can't do giveaways, and the thing i was going to give away, got lost. but heyyy! i might find some old meter to giveaway. i will be MUCH more active in the summer ; around may - september. eventually, i will be posting every day. 

tomorrow, i will be uploading another blog, this time about diabetes. 

thank you! i hope you had a good holiday!

//// indigo 

Tuesday, January 14, 2014

Inactiveness, diabetes issues, New Years

Hello diabetics and non-diabetics!

 

It is Indigo, 'case you don't remember me.

 

Soo this blog post is saying a few things...


1. Inactivity

So you may have noticed we haven't posted for about 2 months. :c Amelia said she was having diabetes problems and Shannon and I were having computer problems... I'm not sure about Rachel...

2. Diabetes issues

Alright. Where do I begin?
Lets start in December...

In December, I was having extreme highs. And I mean like 302, 299, 370...
And I was having averages of 200 an 190. :c
Now, yesterday, I had a 210, then 264, then 426, then 303, 298, and ended up with a 118.
Sooooo really bad numbers.
And I got the pump delivered, but some of the stuff got recalled. -.-

3. New Years

Who else kept track of the stuff they last did/had in 2013?

Last thing I ate in 2013: A cookie ice cream sandwhich
Last thing I drank in 2013: a diet Dr Pepper
Last thing I said of 2013: "AAAAAAAAAAAAAAAAAAAH"
Last number of 2013: 75
First number of 2014: 104

Anyways I will be posting more c:

~Indigo c:

 

Saturday, November 2, 2013

Pump!!

Hey guys! Sorry for not posting for a long LONG time.
Soooo, on August 31st my dad took me to a PREPUMP CLASS! That means I am in training and still getting ready for my pump! I have 2 pumps I really want.
1.  T-Slim Pump


2.  One-Touch Ping

Those are the ones I REALLY want. If you have one of these, can you write a review in the comments?
Thanks!

Indigo ;)

Tuesday, October 8, 2013

Amelia's 5th Diabetes Dash!

On October 19 I am going to have Amelia's Diabetes Dash where I ask people to come to a park with thier bikes, scooters, roller skates, a picnic lunch (we will have snacks there) and a donation for JDRF (Juvenile Diabetes Research Foundation).  It is a lot of fun while raising money for JDRF!
peacelovehopediabetes.blogspot.com/p/amelias-5th.html
Click here for more info: peacelovehopediabetes.blogspot.com/p/amelias-5th.html
I hope you can come!
Amelia

Sunday, September 1, 2013

JDRF 2013 Children's Congress Delegate Blog

Hi! I am a blogger on the Children's Congress Delegate blog!  Here is the link to one of my posts:  Capital Hill Essentials and here is a link to my other post: A Picture Is Worth A Thousand Words.
Please check it out!
Amelia

Friday, August 30, 2013

Tuesday, August 27, 2013

Frenemies

So a couple nights ago I watched the movie Frenemies!  It was really good!  Mary Mouser is a great actress.  If you have not seen this movie yet you should watch it.  It is cool to think that while you are watching the movie you have no idea that anybody has Type 1 Diabetes.  Have you seen Frenemies?  Did you like it?  What is your favorite story?  Please comment and tell me!
I got this picture from http://disneychannel.disney.com/frenemies

Amelia

Thursday, August 22, 2013

I know a story, sad but true

I have a story, sad but true...
It is about a little girl named Marleigh.  She has Type 1 Diabetes and Leukemia.  There is not much else to say except PLEASE DONATE!  This family is going through so much and need as much money and support as they can get.  Here is the website: Miracle For Marleigh.
http://www.miracleformarleigh.com/
www.miracleformarleigh.com

Here are some pictures of her (all pictures are from www.miracleformarleigh.com)
Please make a miracle for Marleigh!
Amelia

Tuesday, August 20, 2013

Children's Congress!!!


This summer I had the AMAZING opportunity to go to Washington, D.C. and meet with our state's Congressmen and their staff. 5 other NJ delegates and I shared our stories with our Congressmen and asked them to continue funding for a cure. I even had the chance to personally shake hands with our Vice President; Joe Biden!!! I have to say, Children's Congress was truly amazing... To wake up in the morning knowing that there was 160 other Type One Diabetics that were going to breakfast with measuring cups, their blood sugar meter, juice boxes, insulin, and all of the other necessary things needed to keep themselves alive. - It made me feel like I was just any other kid. 

Children's Congress was also very inspiring; not only for me but for all 161 delegates from across the U.S. and around the world. There were also many great Celebrity Role-Models who are Type One Diabetics as well. The list includes Mary Mouser (an actress who starred in Frienemies!), Charlie Kimball (Indiana 500 Race-car Driver), Sam Talbot (Chef who works with the Food Network), and many more! Even NBA Star Ray Allen appeared in honor of his son, Walker Allen, who is a T1D as well. Many delegates (including ME!! :), had the chance to ask some of these role-models questions about how they manage their T1D while pursuing their dreams at the same time. It made me realize that I can do anything I want, even though my T1D makes things really difficult for me. 
Even though the government is funding research for T1D now, in September of 2014 funding for the Special Diabetes Program will expire!!! The SDP is one of the main programs funding research for a cure, contributing $150 million each year it is renewed. If funding for this program stops, every project focused on finding a cure stops.  Research that helps me, and millions of other Type One Diabetics not have to prick our fingers, check our blood-sugars, get shots of insulin, and all of the other difficult things that come with being a Type One Diabetic. That’s why we all of us delegates went to D.C. this summer to continue the funding!!!!! :-)
Overall,  I have to say...
Children's Congress was an AMAZING once-in-a-lifetime experience! :-)
I made so many life-long friends and also made so many amazing memories.
Children's Congress was so much fun, I made so many friends, and I really hope that we all made a difference!
Let's help turn Type One into Type NONE!
-Rachel :-) <3


Monday, August 19, 2013

Mary Mouser

I am crazy about Mary Mouser!  Mary Mouser is an actress from the Disney movie "Frenemies" and ABC's "Body of Proof".   I met her at Children's Congress.  She is really, really, really nice!  I remember the time that JDRF announced the celebrities for Children's Congress: Rachel and me were FaceTimeing and Rachel said that she had just seen somebody post on Facebook that the celebrity e-mail was out.  We quickly checked our e-mails and saw the celebrities.  I was so excited!  I was looking at all of them and seeing who they were and then Rachel said "Look!  She's from Frenemies!" and I got really excited becuase I had just watched the beginning of Frenemies a couple days before.  And then I asked her who and she said Mary Mouser!  We both were so excited!  Then when we were in Washington and Rachel, Me, and a couple of other girls were standing near the elevaters at the hotel and we saw her get out of one of the elevaters and we all got really excited!  After that she was a couple of people behind me while I was waiting in line for dinner.  I found Rachel at the back of the line and she came up with me to get her autograph.  She also complemented my nails and my necklace!  Then we were at a dinner for Children's Congress and I went up to her and she took a picture with me!
Mary Mouser is AWESOME!!!  
Tonight Frenemies is on Disney Channel at 9:00.  

Amelia

Saturday, August 17, 2013

Summer Jamboree!

Earlier today I went to a Summer Jamboree for diabetic patients and their families at the hospital I go to! It was really fun!  Me, my mom, and my sister (Leah) went.  Here are some pictures:
  
Leah and me with Lenny the Lion!  I wore my Children's Congress t-shirt.
I got my face painted!

Amelia

Tuesday, August 13, 2013

:(

I am missing Children's Congress so much.  One month ago at this time I had just gotten home from Washington three days before.  I miss so many things.


  • I miss seeing everybody everyday.  
  • I miss watching everybody check their blood sugars and bolus on their insulin pumps.  
  • I miss seeing Crystal Bowersox in line at Starbucks or standing in the elevator with Mary Mouser.  
  • I miss seeing all of the other delegates at breakfast, lunch, and dinner.  
  • I miss knowing that everywhere I go there will be another Type 1 Diabetic there too.  
  • I miss not carrying around my Children's Congress bag with my schedule and camera. 
  • I miss going to bed and knowing the next morning will be another great day of Children's Congress. 
  • I miss sleeping in the same hotel as 161 families with Type 1 Diabetics.  
  • I miss getting up early and riding the elevator down to breakfast to see all of the other delegates.  
  • I miss wearing my Children's Congress shirt and khakis.
I miss everything about Children's Congress.

Amelia

Me at Children's Congress

Tuesday, July 23, 2013

T1D Celebrities at Children's Congress

At Children's Congress there were a bunch of celebrities who have Type 1 Diabetes (T1D).

Mary Mouser:
Mary Mouser is an actress.  She stars in: ABC's Body of Proof (Which I have not seen) and the Disney Movie Frenemies (I only saw the beginning but I loved it and I really want to see the rest).

Aaron Kowalski:
Aaron Kowalski is a researcher and the head of the Artificial Pancreas Project.

Charlie Kimball:
Charlie Kimball is a race car driver.  He said that on his steering wheel he has air pressure, speed, blood sugar from his cgm...=)

Brian Kenny:
Brian Kenny is an MLB sportscaster.  He does not have Diabetes, but his daughter Camille does.

Crystal Bowersox:
Crystal Bowersox was on American Idol.  All of the delegates got to sing with her!

Gary Hall Jr.
Gary Hall Jr. has won ten olympic medals in swimming and is part of the olympic hall of fame!

Leslee Adkins:
Leslee Adkins is a writer and journalist.  See that pink thing on her shirt that looks like an i-phone?  Its not!  It an insulin pump called the T-Slim!

Jean Smart, Ray Allen (His son, Walker, who was a delegate has diabetes), Nicole Johnson, and Sam Talbot were also there but I did not get pictures with them.

Also, check out these blog posts about Children's Congress:
Children's Congress: Awesome, Exciting, Inspiring! - The Princess and the Pump
Such an amazing story to tell his grand kids! - Everyday Highs and Lows
Rocco speaks on Capitol Hill for JDRf Children's Congress 2013! - Everyday Highs and Lows

Sunday, July 21, 2013

It was great meeting so many delegates while in D.C.

                                                         Allison from CA
                                                   Megan from Nova Scotia, Canada
                                                            Alexis and Cerriah from FL
                                                                      Gilad from MA
                                                          Justin from SC,    Cindy from CA

Rebecca from IN, Jaden & Deven from KY

                                                                Tacy from MD
                                                             Anna and Emma from MN!
                                                            Klaire from IL
                                                     me, Wyatt, Kimmy & Shelby - WI Delegates

Thursday, July 11, 2013

Children's Congress Pictures

I am back from Washington D.C.!  There is only one word to describe it: AMAZING!

Here are some pictures:
Out to lunch!  From left to right: Amber, Eileen, Rachel, Amelia, Lyndsey

Amelia and Rachel getting ready for the song
From left to right: Amelia, Rachel, Anna, Emma

Out to dinner!  From left to right: Rachel (not the blogger), Rachel (the blogger), Eileen, Lyndsey, Amber, Amelia


Me in front of the capitol building!



All of the PA delegates and an international delegate!  From left to right: Amelia, Brett, Mikalae, Nikki (international), Hannah, Caroline

Saturday, July 6, 2013

Blue Nails for Children's Congress!

I am painting my nails blue for Children's Congress!  Children's Congress is in 2 days!  I am so excited!  



Tuesday, July 2, 2013

Lauren's Hope- T1D Medical Bracelets

Hey guys!
As a lot of you know, Lauren's Hope is a fabulous company that makes medical bracelets, specifically for Type One Diabetes! They have a fun and funky variety of pretty medical bracelets that you can engrave with your own information. I have been ordering from here ever since I was diagnosed and the variety of bracelets grow with you as well. :-)
Here is the link:
http://www.laurenshope.com/
Have fun finding a bracelet that matches YOU!!! :-)
-Rachel

Our 1500th Pageview!!!!

Hey guys!
AWESOME NEWS!!!
We just got our 1500th pageview!!! It's so exciting!!!
Also, Children's Congress is only 6 days away!!!
I will be keeping you all posted while Amelia, Shannon and I are at Children's Congress.
Be sure to check back here at Walking to Washington!
-Rachel :-)